MLD (Metachromatic Leukodystrophie) is a very rare genetic disease. Since 1999, the MLD Foundation has organized and sponsored six MLD Family Conferences where parents and families could meet, support each other, learn about treatments and talk to researchers and doctors. All but the first conference was taped to share with those who could not attend. BoinxTV was used to record 15 hours of presentations at the MLD Family Conference March 2009 in Munich, Germany.